Ya'll have no idea how I hold my breath when I post sometimes!
Thanks for all the kind words! Much appreciated. Before you go promoting me to rock star status, you should know that I spent most of last Friday sitting in a chair sobbing.
Granted, the unexpected leak and subsequent mold discovery in our 1961 house that morning did not help the situation, nor did the meds (that I am no longer taking because of their ridiculous side effects) for my migraines ... but yes, TEARS. Lots and lots of tears.
I was in such a rush to get something posted, I skipped a few details... and lot of grammar. Forgiveness welcomed!
Since the FASD post spread quickly (and is now possibly the most read on this blog??), I didn't want to go back to make changes after the fact. I got a LOT of messages, emails, and texts that night and the next day with questions. Some were a little too personal, so to be frank: I'm not going to answer those. No offense, but after much debate, I did open up for the sake of education and advocacy. However, some things need to be kept private unless my children choose to share it themselves some day.
Other questions, I will try to answer here.
My ONLY "expertise" is regarding my own kids. I'm not suggesting every person living with organic brain injury is the same (they're not). This is just OUR experience.
Also of note, there are some differences in Fetal Alcohol Syndrome and Fetal Alcohol Effects. It all gets way more complicated and complex, I'm just sharing what a corner of our world looks like.
Apparently, my Oreo example was clear as mud! It really is hard to explain and/or understand how someone can KNOW something, and they KNOW they know it and you KNOW they know it and they don't KNOW it, you know?
I hold up a flashcard that says "her".
Brynn yells, "Girl! She!"
Every day.
Logically, she knows what sounds an H or a G make and that they don't look the same yada yada... but her brain pulls the closest thing it can find, trying to make a connection.
The answer to the most asked question: It will never change. While some things may get easier or they may find ways to access information faster/more easily... the struggles overall will remain the same. Our job is to provide the tools they need to succeed. Success is relative and the definition changes every day. They won't outgrow it, they won't be cured. This will be a battle they will always fight. BUT we know in our heart of hearts that these two are over-comers and they will do GREAT things.
On a lighter note: I take advantage of the opportunity homeschool allows to infuse my children's brains with Broadway.
A 'la Joseph and the Amazing Technicolor Dreamcoat, for starters. A whole week of Joseph!
We read our Bibles, watched the cartoon movie, we talked about being kind to siblings, telling the truth, trusting your spiritual discernment, and we rocked out to my scratched 15-year-old soundtrack.
Dreamcoats (and a swollen shut eye for C. Wasp)
Studying Genesis: other than naming Rudy and Jedi as two of Joseph's brothers, it went pretty well!
Their end of the week reward was watching the "real" Joseph video with Donny Osmond (Oops, I forgot the girls wear pasties and Donny O is was a little too accurate with his loin cloth.)
You know me- go big or go home. Is this not how the rest of you study Bible lessons?
B is Joseph (long hair was more important than pink hair) and L is wearing a wig to LOOK LIKE (not ACT like) Potiphar's Wife.
Elvis...errr... Paroah!
You've seen it, right? You should.
See- it's not all hard all the time!
We got a lot of good stuff going on over here too.
go, go, go "joseph" you know what they say
hang on now "joseph" you'll make it some day
shalala "joseph" you're doing fine
you and your dreamcoat ahead of your time
We like our dreams just the way they are! :)
1 comment:
Awesome job mama!
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