My life probably would have been a *little* less chaotic had I posted this five or so days ago, but it was just chaotic enough that I didn't have time. So, here's the scoop.
Back story:
Cale had what I/we thought were seizures when he was an infant. Nathan was never home when these occurred so I was the only witness, but based on my description/experiences in special education classrooms/environments, our pediatrician agreed that it did sound like that's what was happening. However, his EEG and MRI both came back normal. After about 3-4, they stopped.
Fast-forward:
Late summer/early fall, Cale has a few behavior "outbursts" that were pretty extreme. As in, out of nowhere, his eyes would glass over and he would literally scream at me in a voice different than his own. Even take a swing at me. These were NOT temper tantrums. I have three kids, I know what a temper tantrum looks like. These were uncharacteristically violent and scary. After each one, he would cry in his NORMAL voice for just a second and then
immediately fall asleep.
Then, last Tuesday night he had again what appeared to be a more typical seizure. The kind he had when he was a baby. The ugly, scary kind where his arms and legs are contracted and he is moaning/screaming in pain. His eyes are vacant, his body trembling. This time, we both watched the whole thing. I've seen him do it before, but Nathan didn't like it one bit. The worst part was afterward, it took WAY too long (probably only a matter of minutes... felt like hours) for him to be able to make eye contact or act like he ever even knew we were there). It actually wasn't until he fell asleep and we woke him back up. He was the able to look at us and tell us that he didn't want to wake up yet.
We already had a well-check for the twins scheduled for the next morning, thank goodness, and were able to discuss all of this at length with Dr.K.
He agreed, still, that they DO sound like seizures, HOWEVER, this particular type of seizure - Partial Complex - does not show up on an EEG or MRI. It occurs in the frontal lobe and can appear as a typical seizure OR as a sudden change in behavior, so Cale's outbursts/tantrums/whathaveyou... were actually seizures.
Cale IS fine now. He is his normal car-obsessed, snuggly, picky-eater self. And will be unil another seizure (of any kind) occurs, which could be today, tomorrow, or months from now. The next step is to see a pediatric neurologist. The earliest we could get in was end of April. Although we were told to call every day after March 5th to see if there is a cancellation. They might do a no-sleep study before officially diagnosing him, but since he's probably had 7-8 seizures at this point, they may not.
Most likely, we will be able to control these with meds. We are told that this particular type of seizure is very manageable and he WILL be fine. Thanks for all the prayers and happy thoughts!
And just incase you were curious, neither Brynn nor Cale made it onto the height chart yet! Still hovering well above 100th percentile! No surprise. Dr.K says they are the size of most kindergarteners, lol. If I remember correctly (it was a long,emotional day!) she was 43 inches tall, he was 44? And about 38lb, 40lb respectively.